so, we went out to Utah for a week. it was nice, it felt like we were going home after a long and terrible vacation to california. i dont think i was prepared to see my home housing another family. it was hard. i remembered all my family pictures and decorations hanging on the wall. the memories that came with every room. i began to cry. i know its a stupid thing to cry over. its just a house, but still. heres what i am going through since joshs birthday. i started my clinical trial in october. i take a pill once a day, and get an infusion of another drug once a week.
fun side effects include:
-not being able to taste salt
-not being able to taste sugar
-nausea (sometimes the fun that comes with nausea too)
-low energy
- and my hair is growing in white. :(
things were going well for a while, untill my state insurance decided to change me to another small insurance company. (im on disability so im suppose to stay on medi-Cal.) now my doctors office isnt able to accept that plan so hey, that means no more treatment. i called medi_cal and complained, but apparently its a lot easier to change me off of their plan than to go back. so im in limbo for now.
we went to the Prelitigation hearing against the hospital tuesday. They made me look like a liar. the doctors pretended to have empathy for me and then said i never told them any of my concerns. this makes me sad because now we might not get anything. which means i might never move out of my moms.
it seems like all we have is bad luck. we are broke, living with my mom, and now i cant afford my treatment. i wish my luck would change. i really want to just get a place of our own, but i dont think thats going to happen...
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